Bikaner:- Two unique twins were born in a hospital in Nokha town of Bikaner district. However, everyone is surprised to see these twins. These two twins have a rare disease in which their skin looks like plastic. The skin of these two twins is very tough. Both these twins were born in a private hospital in Nokha. Due to the condition of these children being very serious, these children have been transferred to PBM Hospital in Bikaner. Now the condition of these two twins is said to be stable.
This disease is one in millions
Doctor Vishesh Chaudhary told Local 18 that this is probably the first case in the country. This disease is very rare. This is one surviving child in three to five lakh children. One such disease occurs in millions of children. Here a woman was delivered about two months ago. One child was a boy, who weighed 1 kg 500 grams, while the other was a girl, who weighed 1 kg 530 grams. Both were transferred to the government hospital. The condition of this family is financially weak. Therefore these children have been sent to the government hospital. In this disease the body is under the hard skin. Such children are called alien children. They can become healthy if taken good care for a few years. In such cases children survive only for a few years. In some special cases, children can survive even till adolescence.
The doctor said that at present both the children are healthy. There is a girl and a boy among them. Their skin is torn at many places. The twins suffer from a rare disease called harlequin-type ichthyosis, in which the newborns are born without skin and underdeveloped eyes. Children suffering from this disease survive only for a week and their mortality rate is up to 50%. It is necessary to check them timely. The doctor told that this disease occurs in the newborn due to a defect in the genes of the parents. In this disease, the child is born with a layer that looks like plastic on the body.
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10 percent chance of recovery
23-23 chromosomes are found in men and women. If both chromosomes are infected, the child born may have ichthyosis. Gradually this layer starts bursting and the pain caused by it becomes unbearable. If the infection increases, it will be difficult to save his life. In many cases such children shed this layer within ten days. Due to this disease, 10% of children can recover completely, but they also have ichthyosis (skin related) problems throughout their life. Their skin becomes hard and they have to live like this, which is very difficult.
Tags: Amazing news, Bikaner news, Local18, Rajasthan news
FIRST PUBLISHED: November 6, 2024, 15:39 IST
